Monday, May 20, 2019

Late night

We didn’t see any seizures until 7 tonight, and then a few small ones popped up. To speed thingsup a bit, we are doing a sleep deprivation test. So, Gus Gus and I get to party hard until midnight. Then he gets to sleep for four hours, awake at 4 am and stay awake for more stressing him out.We hope for no tonic clonics, but plenty of absence seizures. And a lotta patience for this Mom!

https://drive.google.com/uc?export=view&id=1eAx3_-I4pYwVD_XzmEfqZx8YONbKfLiV

We have paint with stickers, play on an iPad, watch movies, puzzles, board games, card games, writing journal,books, and activity pages. And lots of tea for me!

https://drive.google.com/uc?export=view&id=1XlqSiCcwfBYWkssNeELKB7H5Z6iGzDth
https://drive.google.com/uc?export=view&id=16KHOwooOwBwazEJH1si1oJPMwWLXkDRn

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