That was sent to me while we were in the ER. Lainie had a seizure. There would be no weaning off meds. The label "epilepsy" would continue to be tagged on her IEP, medical records, on her. And with each additional seizure, the hope that she'll outgrow the seizures fades into history.
I learned these past few weeks there are a few quick ways to break your mama's heart. And my kids have tried a few of them.
Seizures are our monster. Hey, at least it has a name. It is always lurking the shadows, always scary, bringing on nightmares. And just when you think you have slayed the monster, he returns.
But you know, I think we've gotten "okay" with them. When Maggie had her seizure back 8 years ago, my response was a loud F-bomb. Lainie's first one drew a sh**. The next one a damn. And so on. We didn't even cuss with this one. Just told Jay to get her med, kicked the other girls out of the room, and took care of her. Our acceptance of a seizure kind of hurts my heart.
Apparently, it hurts Daddy's heart a bit, too.